Nystagmus is characterised by the involuntary movement of the eyes, which causes poor vision. Researchers are still trying to fully understand exactly how the eye movement affects what those with nystagmus see.
At present, there is no known cure and it affects at least 1 in 1,000 people, usually first appearing from around 6-9weeks old. It is the most common form of serious visual impairment in children.
Early diagnosis is so important in ensuring that the right help and support is available early on, and IN-vision is working with a number of research centres and clinics to improve the patient pathway. Only around half of those that get diagnoses with nystagmus will understand the causes and IN-vision is also working hard to help researchers and clinicians better understand the condition, which we hope will one day lead us to a cure or prevention.