Naomi was diagnosed with Nystagmus (amongst other things) when a young child and her parents struggled at the time in getting the answers and information they wanted and needed. Liz Charter, founder of IN-vision had the same issues when her son was born nearly 7 years ago and as a result of her frustration she founded the charity in 2010. It became a Charitable Trust, recognised by the Charity Commission in May 2011.
The aim of the charity is to further research into Infantile Nystagmus which affects 1 in 1,000 children. There are a number of dedicated research centres in the UK, most of which are attached to clinics. These centres desperately need our support if we are going to make the most of the talent and dedication that is available. Unfortunately, research into nystagmus is hampered by lack of funding. There is so much we still do not know about this condition, including how it affects visual acuity.*
IN-vision aims to improve our understanding of nystagmus and raise awareness of the condition, its affects on visual acuity and quality of life. The charity is dedicated to furthering research that will one day lead to a cure.
When Naomi became Patron of IN-vision in 2014, she found a cause that was worthy of a once-in-a-lifetime challenge. After retiring from competitive rowing in 2013, Naomi has been keen to use what she has learnt to motivate, inspire and enable others. Funds raised will be used to improve the patient pathway and support collaboration in Nystagmus Research Centres.
Thank you for your support.
*Visual acuity commonly refers to the clarity of vision: the ability to distinguish details and shapes of objects.